Tania Kamphaus
Director, Translational Science Metabolic Disorders & Director of Patient Engagement, Foundation for the National Institutes of Health (FNIH)

Dr. Kamphaus has the dual role of leading FNIH Patient Engagement efforts and providing oversight to the Metabolic Disorders Programs within Translational Sciences. In her role as FNIH’s Patient Engagement lead, Dr. Kamphaus is responsible for establishing best practices for engaging patient voices for meaningful, end-to-end patient involvement in public-private partnerships within FNIH programs. She co-chairs to FNIH Patient Engagement Council, serves on the core committee for FNIH DEIA efforts, and is leading the establishment of a Patient Ambassadors Program.

In her role as the Director of Metabolic Disorders Portfolio, she is responsible for developing new multi-stakeholder public-private partnerships that include stakeholders at NIH, FDA, non-profits and biopharmaceutical industry. Dr. Kamphaus oversees three target validation programs within Accelerating Medicines Partnerships in areas of Common Metabolic Diseases, Heart Failure, and Type 2 Diabetes. She also oversees projects under the Metabolic Disorders Biomarkers Consortium, including biomarker qualification efforts in nonalcoholic steatohepatitis (NASH), bone quality, pre-eclampsia, and emerging programs in reproductive health and digital biomarkers.

Dr. Kamphaus is trained in molecular genetics and cell biology and skilled in strategic planning and collaborative program development across basic, translational and patient-centric clinical research. Prior to joining the FNIH, she directed the office of Clinical Protocol Development at the University of Wisconsin-Madison, where she supported development of large clinical trial protocols. Before her work in clinical trials, Dr. Kamphaus was the Director of Collaborative Research at the Crohn’s and Colitis Foundation where she was responsible for developing flagship programs like IBD Plexus, Gut Microbiome, and the IBD Genetics Initiative. Dr. Kamphaus conducted her postdoctoral fellowship at Columbia University. She earned her PhD in Molecular Genetics from The Ohio State University and her Masters degree in Biotechnology from Madurai Kamaraj University, India.

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